K-T Connections: Home Page

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Touch or click the links to access city views of the K-T Connections directory

 … links by City

Boston, Ma

Cincinnati, Oh

Houston, Ca

Los Angeles, Ca

New York, Ny

Omaha, Ne

Portland, Oe

Rochester, Mn

San Diego, Ca

 

Please Read:

A huge thank you to the K-T Support Community for their unselfish participation in this directory and for being an important part of my personal safety net.  Keep the recommendations coming!  Please remember to instruct me on your reference regarding your approval to include your name as the source.  If you elect not to approve, this is quite OK, I’ll simply acknowledge the referral coming from the K-T Support Community. 

The goal of this publication is to provide K-T Kids and K-T Parents a starting place.  I’m not suggesting that there are no other qualified K-T experienced facilities or doctors than those listed here.  Simply put, I do not have the personal resources to discover and list every doctor with K-T experience in the world.  Your own personal research is always warranted, even when considering the doctors listed here. 

Please don’t infer depth or breadth of experience or accessible care based on order of placement here.  I’m working off a list and publishing names, etc. as quickly as time allows.

No fees are charged to access this directory and no monies have been or will be taken to obtain a spot in this directory.  Born affected by Klippel-Trenaunay Syndrome, I’m a 15-year volunteer dedicated to the care and education of K-T Kids and K-T Parents.  The information compiled here is significantly the result and contribution of many K-T Parents and K-T Kids who have provided personal referrals knowing these endeavors will help new parents and folks born with K-T to locate resources that have experience with K-T Syndrome.  This in the aggregate is their product. 

I continue to do personal research seeking out resources, particularly in cities not currently listed here, and especially those that have a deep commitment to our interests.

Many, not all, of the facilities and doctors listed in this journal are long-standing pioneers in the diagnosis and management of Klippel-Trenaunay Syndrome (K-T).  The pioneers typically work at legacy medical institutions and have substantial experience with K-T both in terms of depth and complexity of research and care and large number of patients.  Many of the pioneering or legacy facilities and doctors are reported to be open to consultation with your local doctor. Hopefully, if there were that need, the local doctors with less experience would be willing to contact those with more experience for consultation.

I’m not a member of a private club, nor do I feel comfortable suggesting that K-T professionals must come from some exclusive medical club.  There are facilities and doctors listed here that may not have the same breadth and depth of experience as the pioneers.  These professionals have been referred by members of the Klippel-Trenaunay Support Group.  In that not all members are able to travel to legacy facilities and doctors, we include these because our members have found these entities to be reasonably informed, or willing to learn about K-T, as well as having given the referring party a satisfactory experience.

NO CERTIFICATIONS of the qualifications of listed facilities and doctors are made here.  Again, due diligence is required on your part before seeking professional attention from any of these entities. It all rests with you.  You’re encouraged to post inquiries to K-T Forums asking their members if they have any experience with these facilities and doctors.

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Note:  For additional connections please contact Mellenee Finger, the manager of K-T.ORG.  This organization is the pioneer of Klippel-Trenaunay Support Group.  First among equals it organized in 1986 for the express purpose of challenging the best-of-the-best medical providers to offer innovative care for K-T Syndrome kids and adults.  It is an open membership group that has four points of light – (1) The Bi-Annual Klippel-Trenaunay Syndrome Conference , (2) The Email K-T Support Group, (3) The Facebook K-T Support Group (K-T.ORG), and (4) The classically delivered Website Support Group (K-T.ORG).

 

K-T Connections: Cincinnatti, Oh

Cincinnati, Ohio 

Denise Adams
  • Inpatient Clinical Director, Division of Hematology/Oncology Medical
  • Director, Comprehensive Hemangiomas and Vascular Malformation Clinic
  • Associate Professor of Clinical Pediatrics, University of Cincinnati College of Medicine, Cincinnati Children’s Hospital Medical Center, Division of Hematology-Oncology, Hemangiomas and Vascular Malformations Clinic, Cincinnati, OH

 

Amy B. Reed, MD, FACS
  • Assistant Professor of Surgery, Division of Vascular Surgery in Cincinnati
  • Director-Vascular Surgery Fellowship Program, University of Cincinnati, School of Medicine, Department of Surgery
  • UC Physicians at University Pointe, 7700 University Court, Suite 2000, West Chester, Ohio 45069
  • UC Physicians Medical Arts Building, 222 Piedmont Avenue, Suite 7000, Cincinnati, OH 45219

 

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[ Information herein is proprietary and may not be used, copied, or otherwise lifted without prior written approval * ]

  • Updates and additions to this directory are welcome.
  • If you wish to be listed as referral source for a listed Connection please let us know.
  • Comments about a listed Connection are welcome, please keep these professionally anchored.
  • Connections are not listed in any particular order and not intended to infer preference or order of recommendation.
  • Connections may be marked as personal referals from K-T kids* or from our General Research.
  • Home Page and Listing Guidelines for : K-T Connections *

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* KTS Connections, K-TS Connections, K-T Connections and like derivatives for and associated with Klippel-Trenaunay Syndrome Connections directories and referral services for medical, non-medical and other professional and service endeavors. ©2011 ®2011

 

K-T Connections: Boston, Ma

Boston, MA

Steven J. Fishman, MD
[ K-T Community Referral ]
  • Co-Director, Vascular Anomalies Center
  • Stuart and Jane Weitzman Family Chair in Surgery Senior Associate in Surgery
  • Associate Professor, Harvard Medical School
  • Children’s Hospital Boston, Department of Surgery
  • 300 Longwood Ave, Fegan 3, Boston, MA 02115-5724

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[  Information herein is proprietary and may not be used, copied, or otherwise lifted without prior written approval * ]

  • Updates and additions to this directory are welcome.
  • If you wish to be listed as referral source for a listed Connection please let us know.
  • Comments about a listed Connection are welcome, please keep these professionally anchored.
  • Connections are not listed in any particular order and not intended to infer preference or order of recommendation.
  • Connections may be marked as personal referals from K-T kids* or from our General Research.
  • Home Page and Listing Guidelines for : K-T Connections *

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*  KTS Connections, K-TS Connections, K-T Connections and like derivatives for and associated with Klippel-Trenaunay Syndrome Connections directories and referral services for medical, non-medical and other professional and service endeavors. ©2011 ®2011

 

K-T Connections: Rochester, Mn

Rochester, MN 

David J. Driscoll, MD
Professor of Pediatrics
Pediatric Cardiology
Mayo Clinic
200 First St. S.W.,
Rochester, MN 55905

 

Peter Gloviczki, MD
Director, Gonda Vascular Center
Chair, Vascular Surgery; Professor of Surgery
Mayo Clinic
200 First St. S.W.,
Rochester, MN 55905

 

Anthony Stans, MD
Assistant Professor of Orthopedics
Mayo Clinic
200 First St. S.W.,
Rochester, MN 55905

 

William Shaughnessy, MD
Associate Professor of Orthopedics
Mayo Clinic
200 First St. S.W.
Rochester, MN 55905

 

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[ Information herein is proprietary and may not be used, copied, or otherwise lifted without prior written approval * ]

  • Updates and additions to this directory are welcome.
  • If you wish to be listed as referral source for a listed Connection please let us know.
  • Comments about a listed Connection are welcome, please keep these professionally anchored.
  • Connections are not listed in any particular order and not intended to infer preference or order of recommendation.
  • Connections may be marked as personal referals from K-T kids* or from our General Research.
  • Home Page and Listing Guidelines for : K-T Connections *

– – – – – – – – –

* KTS Connections, K-TS Connections, K-T Connections and like derivatives for and associated with Klippel-Trenaunay Syndrome Connections directories and referral services for medical, non-medical and other professional and service endeavors. ©2011 ®2011

 

K-T Connections: San Diego, Ca

San Diego, Ca

Ralph Dilly, MD
[ K-T Kid Referral by: William Anton Lee ]
  • Division Head, Vascular Surgery
  • Chief of Staff, GreenHospital
  • Vice Chairman, Department of Surgery, Scripps Clinic Medical Group
  • Surgeon-in-Chief, Scripps Green Hospital
  • Joined Scripps Clinic Medical Group: 1978
  • Scripps Clinic Torrey Pines
  •  10666 N Torrey Pines Rd SW210 0
  • La Jolla, CA 92037
  • Phone: (858) 554-8988

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[ Information herein is proprietary and may not be used, copied, or otherwise lifted without prior written approval * ]

  • Updates and additions to this directory are welcome.
  • If you wish to be listed as referral source for a listed Connection please let us know.
  • Comments about a listed Connection are welcome, please keep these professionally anchored.
  • Connections are not listed in any particular order and not intended to infer preference or order of recommendation.
  • Connections may be marked as personal referals from K-T kids* or from our General Research.
  • Home Page and Listing Guidelines for : K-T Connections *

– – – – – – – – –

* KTS Connections, K-TS Connections, K-T Connections and like derivatives for and associated with Klippel-Trenaunay Syndrome Connections directories and referral services for medical, non-medical and other professional and service endeavors. ©2011 ®2011

 

K-T Connections: Houston, Tx

Houston, Texas 

Patricia Burrows, MD
  • Scientific Advisor and Chief of Service, Vascular Anomaly Center- Interventional Radiology
  • Texas Children’s Hospital and Baylor School of Medicine
  • Department of Diagnostic Imaging, Interventional Radiology Service
  • 6621 Fannin St, 1st floor, West Tower, MC 2-2526
  • Houston, TX 77030-2303

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[ Information herein is proprietary and may not be used, copied, or otherwise lifted without prior written approval * ]

  • Updates and additions to this directory are welcome.
  • If you wish to be listed as referral source for a listed Connection please let us know.
  • Comments about a listed Connection are welcome, please keep these professionally anchored.
  • Connections are not listed in any particular order and not intended to infer preference or order of recommendation.
  • Connections may be marked as personal referals from K-T kids* or from our General Research.
  • Home Page and Listing Guidelines for : K-T Connections *

– – – – – – – – –

* KTS Connections, K-TS Connections, K-T Connections and like derivatives for and associated with Klippel-Trenaunay Syndrome Connections directories and referral services for medical, non-medical and other professional and service endeavors. ©2011 ®2011

 

K-T Connections: New York, Ny

New York, New York

Jessica J. Kandel, MD
  • Irving Assistant Professor of Surgery, Division of Pediatric Surgery
    New York-Presbyterian, Morgan Stanley Children’s Hospital
  • Columbia University Medical Center
  • Pediatric Surgery, Vascular Anomalies Service
  • North Room 214, 3959 Broadway, New York, NY 10032

 

Andrei Rebarber, MD
  • Clinical Assistant Professor, Department of Obstetrics and Gynecology
  • New York University, Maternal-Fetal Medicine
  • Skirball Institute, 7, 7N
  • 540 First Avenue, New York, NY, 10016

 

Francine Blei, MD
  • Professor, Departments of Pediatrics (Hematology-Fac) and Surgery (Plastic Surgery)
  • New York University, Langone Medical Center
  • The Stephen D. Hassenfeld Children’s Center for Cancer and Blood Disorders
  • 160 E. 32nd St, 2nd Floor, New York, NY, 10016

 

Ashley S. Roman, MD
  • Assistant Professor, Department of Obstetrics and Gynecology
  • New York University, Langone Medical Center
  • 550 First Avenue, New York, NY 10016

 

[PIC]

Daniel F. Roshan, MD
  • Assistant Professor, Department of Obstetrics and Gynecology
  • New York University, Langone Medical Center
  • 213 Madison Ave, (36th street), Suite 1A, New York, NY, 10016

 

Robert Rosen, MD
  • Co-Director, Division of Peripheral & Endovascular Intervention, Lenox Hill Hospital, Department of Interventional Cardiology
  • 130 East 77th Street, 9th floor, New York, NY 10021

 

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[ Information herein is proprietary and may not be used, copied, or otherwise lifted without prior written approval * ]

  • Updates and additions to this directory are welcome.
  • If you wish to be listed as referral source for a listed Connection please let us know.
  • Comments about a listed Connection are welcome, please keep these professionally anchored.
  • Connections are not listed in any particular order and not intended to infer preference or order of recommendation.
  • Connections may be marked as personal referals from K-T kids* or from our General Research.
  • Home Page and Listing Guidelines for : K-T Connections *

– – – – – – – – –

* KTS Connections, K-TS Connections, K-T Connections and like derivatives for and associated with Klippel-Trenaunay Syndrome Connections directories and referral services for medical, non-medical and other professional and service endeavors. ©2011 ®2011

 

K-T Connections: Los Angeles, Ca

Los Angeles, California 

Dean Anselmo, MD
  • Pediatric Surgery
  • Co-Director of the Vascular Anomalies Clinic
  • Children’s Hospital of Los Angeles
  • Pediatric Surgery #100, Los Angeles, CA 90027

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[ Information herein is proprietary and may not be used, copied, or otherwise lifted without prior written approval * ]

  • Updates and additions to this directory are welcome.
  • If you wish to be listed as referral source for a listed Connection please let us know.
  • Comments about a listed Connection are welcome, please keep these professionally anchored.
  • Connections are not listed in any particular order and not intended to infer preference or order of recommendation.
  • Connections may be marked as personal referals from K-T kids* or from our General Research.
  • Home Page and Listing Guidelines for : K-T Connections *

– – – – – – – – –

* KTS Connections, K-TS Connections, K-T Connections and like derivatives for and associated with Klippel-Trenaunay Syndrome Connections directories and referral services for medical, non-medical and other professional and service endeavors. ©2011 ®2011

 

K-T Connections: Omaha, Ne

Omaha, Nebraska 

Glen Ginsburg, MD
  • Associate Professor of Orthopaedic Surgery, Department of Orthopaedic Surgery
  • (1) University of Nebraska Medical Center
  • 981080 Nebraska Medical Center, Omaha, NE 68198-1080
  • (2) Pediatric Orthopaedic Services
  • 10506 Burt Circle, Omaha, NE 69114

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[ Information herein is proprietary and may not be used, copied, or otherwise lifted without prior written approval * ]

  • Updates and additions to this directory are welcome.
  • If you wish to be listed as referral source for a listed Connection please let us know.
  • Comments about a listed Connection are welcome, please keep these professionally anchored.
  • Connections are not listed in any particular order and not intended to infer preference or order of recommendation.
  • Connections may be marked as personal referals from K-T kids* or from our General Research.
  • Home Page and Listing Guidelines for : K-T Connections *

– – – – – – – – –

* KTS Connections, K-TS Connections, K-T Connections and like derivatives for and associated with Klippel-Trenaunay Syndrome Connections directories and referral services for medical, non-medical and other professional and service endeavors. ©2011 ®2011

 

K-T Connections: Portland, Or

Portland, Oregon 

Alfons L. Krol, MD, FRCPC
 (From General Research) 
  • Director of Pediatric Dermatology at OHSU Doernbecher Children’s Hospital
  • Oregon Health and Science University, Doernbecher Children’s Hospital
  • 3181 SW Sam Jackson Park Rd., Portland, OR 97239

– – – – – – – – – –

[ Information herein is proprietary and may not be used, copied, or otherwise lifted without prior written approval * ]

  • Updates and additions to this directory are welcome.
  • If you wish to be listed as referral source for a listed Connection please let us know.
  • Comments about a listed Connection are welcome, please keep these professionally anchored.
  • Connections are not listed in any particular order and not intended to infer preference or order of recommendation.
  • Connections may be marked as personal referals from K-T kids* or from our General Research.
  • Home Page and Listing Guidelines for : K-T Connections *

– – – – – – – – –

* KTS Connections, K-TS Connections, K-T Connections and like derivatives for and associated with Klippel-Trenaunay Syndrome Connections directories and referral services for medical, non-medical and other professional and service endeavors. ©2011 ®2011